Resources for Families

If you’re interested in contributing your child’s or your own health information to The GALA database, please refer your physician to The GALA DCC.

The Alagille Syndrome Alliance (ALGSA)

The Alagille Syndrome Alliance is an international nonprofit started in 1993, representing the ALGS community and based in the US. This organization is comprised of 1 staff members and 5 board members, working remotely. The Board of Directors locations span internationally allowing for more global outreach, a top priority for the ALGSA. Together, we continue the work of the organization with the sole purpose of making living a life with Alagille Syndrome easier. The ALGSA staff and board includes ALGS patients and family members, all deeply understanding of the complex and difficult nature of ALGS and circumstances resulting from such difficulty.

The Childhood Liver Disease Research Network (ChiLDReN)

The Childhood Liver Disease Research Network (ChiLDReN) is a collaborative team of doctors, nurses, research coordinators, medical facilities and patient support organizations. The ChiLDReN Network has clinical sites and research labs in the US and Canada, and also includes a research lab in London, England. These sites are working together to improve the lives of children and families dealing with rare liver diseases.